Stargazer Posted August 16, 2014 Posted August 16, 2014 You too? What's up with this insidious disease? I hope some cures come around soon for many of us, if indeed I get the dreaded Alzheimer's! Sorry to hear this ERayR! I remember having some hope with stem cell research and even voted for Al Gore because he promised something would be done, and Michael J. Fox was backing him. But boy did I get heck for voting that way from some in laws! A friend at work has a family history of ALS (Lou Gehrig's disease). He had several relatives die of it. When a test for it became available, he took it and found that he had the full genetic complement necessary. For this reason he chose to not have children who would possibly inherit it. He is in his fifties and it hasn't kicked in yet, but it will, and he knows that he will die of it, sooner or later.
Stargazer Posted August 16, 2014 Posted August 16, 2014 I'll settle for one of these, thanks: (But, you're welcome. ) On the other hand, if you know anybody who's eligible, reasonably good-looking (and my take on that is apt to be different than the average take: I have a more liberal definition of good-looking than most ), and between the ages of 35-45, I'll take one of those from her ... I have mentioned this before, but there's one of those in my ward.
ERayR Posted August 16, 2014 Posted August 16, 2014 I have mentioned this before, but there's one of those in my ward. She is probably smart enough to not get mixed up with a denizen of an internet discussion board.
Stargazer Posted August 16, 2014 Posted August 16, 2014 She is probably smart enough to not get mixed up with a denizen of an internet discussion board. Well, we don't need to tell her, do we?
Calm Posted August 16, 2014 Posted August 16, 2014 I think the Parkinsons might have just been the icing on the cake. I have known people with bad chronic depression who have killed themselves, apparently because they felt they could not endure it any longer. I can imagine getting to that point, I just hope I do not ever find myself there. A member of our ward who has since moved away had Parkinsons, and he told me once that it was annoying and looked funny, but inasmuch as it didn't hurt, he didn't feel so bad about it. Though perhaps he was sugar-coating it for me, he seemed to be quite a happy camper in general.The problem is, of course, it gets worse and the drugs have hefty side effects ( I've taken some at 1/10th the dose for my disorder...can you say projectile vomiting, also ended up walking with two canes on one of them I hurt so bad and lost so much strength,, that is when I felt good enough to move, mostly I just laid in bed and tried not to cry).
thesometimesaint Posted August 16, 2014 Author Posted August 16, 2014 The problem is, of course, it gets worse and the drugs have hefty side effects ( I've taken some at 1/10th the dose for my disorder...can you say projectile vomiting, also ended up walking with two canes on one of them I hurt so bad and lost so much strength,, that is when I felt good enough to move, mostly I just laid in bed and tried not to cry). Sounds about right. UGGH
Calm Posted August 17, 2014 Posted August 17, 2014 Hopefully such does not occur for most people. My doctor told me once drug companies could save a bunch by just using me as the only test subject to find out all possible side effects.
Kenngo1969 Posted August 17, 2014 Posted August 17, 2014 She is probably smart enough to not get mixed up with a denizen of an internet discussion board. Particularly this denizen?
ERayR Posted August 17, 2014 Posted August 17, 2014 I've had other deep, long lasting depressions where if someone had come up to me and said shall I blow your brains out, I would have answered "yes, please do" but not where I was trying to calculate the chances of success to ensure no missteps. Or that feeling of panic down in the pit of your stomach that keeps you up all night telling yourself nothing is going to happen.
ERayR Posted August 17, 2014 Posted August 17, 2014 Hopefully such does not occur for most people. My doctor told me once drug companies could save a bunch by just using me as the only test subject to find out all possible side effects. Did I miss where you said you have Parkinson's? I was talking to my pharmacist today and he told me that the newer generation of Parkinson's meds are much better. When I get to the point that I think I need meds I will go in and set down with my pharmacist then take a list of meds to talk over with my doctor. Pharmacists keep current on whats out their. A lot of times your doctor stays with what he/she knows.
Calm Posted August 17, 2014 Posted August 17, 2014 Or that feeling of panic down in the pit of your stomach that keeps you up all night telling yourself nothing is going to happen.Oh yeah. I've been in a closet hiding out because I couldn't convince my body doom was not going to fall.Thankfully those days are gone since I was properly diagnosed and able to get healing sleep.
Calm Posted August 17, 2014 Posted August 17, 2014 (edited) Did I miss where you said you have Parkinson's? I was talking to my pharmacist today and he told me that the newer generation of Parkinson's meds are much better. When I get to the point that I think I need meds I will go in and set down with my pharmacist then take a list of meds to talk over with my doctor. Pharmacists keep current on whats out their. A lot of times your doctor stays with what he/she knows.Nope, the antiparkinson drugs are used for restless legs syndrome because it appears something is off with our dopamine production, possibly how iron is metabolized in the process. We just take tons less.Requip was the one that caused me severe problems. Otoh, my dad can handle it just fine (though I am concern it may be interfering with his memory and awareness but there really is no other option for him).I have been through the complete list. Edited August 17, 2014 by calmoriah
thesometimesaint Posted August 17, 2014 Author Posted August 17, 2014 Nope, the antiparkinson drugs are used for restless legs syndrome because it appears something is off with our dopamine production, possibly how iron is metabolized in the process. We just take tons less.Requip was the one that caused me severe problems. Otoh, my dad can handle it just fine (though I am concern it may be interfering with his memory and awareness but there really is no other option for him).I have been through the complete list. Fortunately I'm on the mildest one. But it still sometimes will overly upset my stomach. I found that if I take it with food it does help most of the time. But as you say we all react differently so hope you find the one that works best for you.
ERayR Posted August 17, 2014 Posted August 17, 2014 Nope, the antiparkinson drugs are used for restless legs syndrome because it appears something is off with our dopamine production, possibly how iron is metabolized in the process. We just take tons less.Requip was the one that caused me severe problems. Otoh, my dad can handle it just fine (though I am concern it may be interfering with his memory and awareness but there really is no other option for him).I have been through the complete list. Sorry to hear that. We each have our own road to walk and sometimes it does get lonely. Check with your pharmacist on the newer meds. Pharmacists are usually the best informed on pharmacology. Get the information from him/her and then take to the doctor to discuss.
Calm Posted August 18, 2014 Posted August 18, 2014 Fortunately I'm on the mildest one. But it still sometimes will overly upset my stomach. I found that if I take it with food it does help most of the time. But as you say we all react differently so hope you find the one that works best for you.I have, thank you. It isn't in the Parkinson's cabinet though.
Calm Posted August 18, 2014 Posted August 18, 2014 Sorry to hear that. We each have our own road to walk and sometimes it does get lonely. Check with your pharmacist on the newer meds. Pharmacists are usually the best informed on pharmacology. Get the information from him/her and then take to the doctor to discuss.Whenever something new comes out, my support group elist thoroughly discusses it (we have input from medical authorities as well as the experiences of over a thousand of the more severe sufferers so it is a great resource), I talk it over with my doc and pharmacist. My doc keeps very much into the research on this as he is a specialist in sleep disorders (which this is classified as though it is also classified as a movement and neurological one as well). 1
Daniel2 Posted August 21, 2014 Posted August 21, 2014 (edited) ERayR and Sometimesaint, so sorry to hear about your Parkinson's diagnoses. My father has been living with Parkinson's for the last 6 years. In fact, six years ago I moved to Utah and back in with my parents to help Mom care for Dad, after he had a series of strokes, prostate cancer, and ultimately his P diagnosis. It isn't an easy disease to live with, but thankfully, medications have continued to rapidly improve.I hadn't ever considered myself a Robin Williams fan by any stretch, but it wasn't till after his passing and I started considering his body of work that I realize how influential he's been in my life. As a child of the 70's, I have vague recollections of "Nanu, Nanu!" from TV's funniest alien. Dead Poets Society was a defining film of my high school years. Aladdin came out while I was on my mission and was the one movie our President let us watch at Christmas that year. Hook, Jumanji, Patch Adams, Good Will Hunting, Awakenings, The Fisher King, Mrs. Doubtfire... He was an incredible actor who's work influenced and informed my life for the better, and always made us laugh. He will be missed. Edited August 21, 2014 by Daniel2
thesometimesaint Posted August 21, 2014 Author Posted August 21, 2014 ERayR and Sometimesaint, so sorry to hear about your Parkinson's diagnoses. My father has been living with Parkinson's for the last 6 years. In fact, six years ago I moved to Utah and back in with my parents to help Mom care for Dad, after he had a series of strokes, prostate cancer, and ultimately his P diagnosis. It isn't an easy disease to live with, but thankfully, medications have continued to rapidly improve.I hadn't ever considered myself a Robin Williams fan by any stretch, but it wasn't till after his passing and I started considering his body of work that I realize how influential he's been in my life. Dead Poets Society was a defining film of my high school years. Aladdin came out while I was on my mission and was the one movie our President let us watch at Christmas that year. Hook, Jumanji, Patch Adams, Good Will Hunting, Awakenings, The Fisher King, Mrs. Doubtfire... He was an incredible actor who's work influenced and informed my life for the better, and always made us laugh. He will be missed. I didn't know you were that young. I've been a fan since Mork and Mindy. Here is a very nice tribute to him by his friend David Letterrmanhttps://www.youtube.com/watch?v=4bVgilYncao
Tacenda Posted August 21, 2014 Posted August 21, 2014 I didn't know you were that young. I've been a fan since Mork and Mindy. Here is a very nice tribute to him by his friend David Letterrmanhttps://www.youtube.com/watch?v=4bVgilYncaoThanks hadn't seen this one, I love his talk show appearances! This one hit me so hard, I bawled like a baby.
ERayR Posted August 21, 2014 Posted August 21, 2014 I hadn't ever considered myself a Robin Williams fan by any stretch, but it wasn't till after his passing and I started considering his body of work that I realize how influential he's been in my life. As a child of the 70's, I have vague recollections of "Nanu, Nanu!" from TV's funniest alien. Dead Poets Society was a defining film of my high school years. Aladdin came out while I was on my mission and was the one movie our President let us watch at Christmas that year. Hook, Jumanji, Patch Adams, Good Will Hunting, Awakenings, The Fisher King, Mrs. Doubtfire... He was an incredible actor who's work influenced and informed my life for the better, and always made us laugh. He will be missed. I have not been a fan of Williams. I did like "Good Morning Viet Nam" but had a huge dislike for "Mork and Mindy". For me the rest of his work was so so.
Raingirl Posted August 22, 2014 Posted August 22, 2014 I was most impressed by his charity work. He did a lot and didn't feel the need to brag about it as some celebrities do. I was especially impressed by his devotion to The Challenged Athlete Foundation and to our veterans. Though he did make me laugh uproariously from time to time, as well.
thesometimesaint Posted August 22, 2014 Author Posted August 22, 2014 I was most impressed by his charity work. He did a lot and didn't feel the need to brag about it as some celebrities do. I was especially impressed by his devotion to The Challenged Athlete Foundation and to our veterans. Though he did make me laugh uproariously from time to time, as well. Thought you might like this.http://brianlord.org/2014/08/12/a-little-known-robin-williams-story/
EllenMaksoud Posted August 23, 2014 Posted August 23, 2014 This hits so close to home I can't stop crying.http://time.com/3111911/robin-williams-dead-parkinsons/It is greatly heartening to me that I see so many gentle thoughtful comments about the event on this page. Other pages have such mean spirited comments. It is so sad. Thank you all.
Raingirl Posted August 23, 2014 Posted August 23, 2014 Thought you might like this.http://brianlord.org/2014/08/12/a-little-known-robin-williams-story/Thank you for sharing that. It is something I did not know about Mr. Williams but it seems very characteristic of him.I wish he could have felt the joy that he brought to so many.
Garden Girl Posted August 23, 2014 Posted August 23, 2014 My very favorite Robin Williams film is "Dead Poets Society." The messages are wonderful... talk about bawling, the last scene where he's leaving the classroom and the boys stand on the desks... Oh Captain, my Captain... brought tears to me. He knew his students would not be afraid to look at things from a different perspective... GG
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