DispensatorMysteriorum Posted May 11, 2011 Posted May 11, 2011 My son was born last June. Due to some rare and undiagnosed immune disorder he has never left the hospital. A few days ago he aqcuired a virus and a septic blood infection of enterococcous. It appears to be a very resistant strand and his immune system is very suppressed by drugs. He has been moved from the bone marrow transplant floor to the ICU. Everyone around here is nervous. Your prayers for a miraculous recovery would be appreciated. His name is Seth.
Nathair/|\ Posted May 11, 2011 Posted May 11, 2011 I'll keep you in my prayers and I'll send you some energy next time I practice my SoP.
Traela Posted May 11, 2011 Posted May 11, 2011 Prayers for Seth, and for his parents. Having a chronically ill child is difficult.
Libs Posted May 12, 2011 Posted May 12, 2011 Prayers for the little guy. May Christ's healing hands and warm comfort surround Seth and his family.
DispensatorMysteriorum Posted May 13, 2011 Author Posted May 13, 2011 Thanks everyone! We are not out of deep water yet but we are swimming a little better
MorningStar Posted May 15, 2011 Posted May 15, 2011 I am amazed by your family! My son was in the hospital for just a week when he was born and I could hardly stand it. I can't imagine 11 months! I'm praying for you guys every day.
Deborah Posted May 16, 2011 Posted May 16, 2011 So sorry about your little guy. So heart-breaking. Hope he will be ok. My prayers are with you.
Bill “Papa” Lee Posted May 17, 2011 Posted May 17, 2011 My son was born last June. Due to some rare and undiagnosed immune disorder he has never left the hospital. A few days ago he aqcuired a virus and a septic blood infection of enterococcous. It appears to be a very resistant strand and his immune system is very suppressed by drugs. He has been moved from the bone marrow transplant floor to the ICU. Everyone around here is nervous. Your prayers for a miraculous recovery would be appreciated. His name is Seth.Seth is a great name. Being a parent and grandparent, I know it is easier to be sick than to have one of your babies sick...it is an heart breaking pain and my prayers are with you and all who are affected.
DispensatorMysteriorum Posted May 19, 2011 Author Posted May 19, 2011 Seth is doing much better. He is out of the ICU now. Thanks for your prayers! Unfortunately, we still have no answers for his underlying condition. The doctors are now in a gridlock about whether he should go home for a while or whether we should move on to a bone marrow transplant. Both options are risky and potentially fatal (50% chance at best on bone marrow transplant, and going home it will likely just be a matter of time unless he is miraculous healed). Needless to say, this is the most difficult situation and decision we have ever faced. We are really hoping for some answers and some divine guidance!
Calm Posted May 19, 2011 Posted May 19, 2011 Seth is doing much better. He is out of the ICU now. Thanks for your prayers! Unfortunately, we still have no answers for his underlying condition. The doctors are now in a gridlock about whether he should go home for a while or whether we should move on to a bone marrow transplant. Both options are risky and potentially fatal (50% chance at best on bone marrow transplant, and going home it will likely just be a matter of time unless he is miraculous healed). Needless to say, this is the most difficult situation and decision we have ever faced. We are really hoping for some answers and some divine guidance!Good News!Are you able to move ahead immediately with the transplant if that is the decision? IOW do you have a donor already available? I cannot imagine the hell family goes through when on waiting lists.
DispensatorMysteriorum Posted May 21, 2011 Author Posted May 21, 2011 Fortunately his brother is a perfect match. We just had a big discussion with the doctors. It's clear they don't all see eye to eye on how to proceed. At this point they are looking at trying to wean him off steroids and immunosuppression and get him ready to come home for a while. The bone marrow transplant is still a possibility, but they are not quite ready to do that without a clear diagnosis. The gamble is, of course, that he could get sick and die before he could get a needed bone marrow transplant if we drag it out too long. We're hoping for some clear answers very soon so that the way forward, though difficult, will at least be clear.
Deborah Posted May 21, 2011 Posted May 21, 2011 I have no words except to say how sorry I am you and your family have to go through this.
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