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Vestibular conditions and florescent lighting in church buildings


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Posted

Ouch...this kind of light makes my eyes see spots..and when that happens..I do everything I can to keep from getting a migraine. 

Posted

I have a bit of vestibular dysfunction. Flourescent lights don't set off seizures for me, but they can wear me out over time and make me feel kind of dizzy.

Posted

We have a family in my ward that is into "Irlen Syndrome", and they wear special sunglasses to mitigate the flourescent light effects.

http://irlen.com/

Quote

What is Irlen Syndrome?

Irlen Syndrome (also referred to at times as Meares-Irlen Syndrome, Scotopic Sensitivity Syndrome, and Visual Stress) is a perceptual processing disorder. It is not an optical problem. It is a problem with the brain’s ability to process visual information. This problem tends to run in families and is not currently identified by other standardized educational or medical tests. 

 

Posted (edited)
On 6/21/2017 at 3:15 PM, Calm said:

Looks like the one you want is Meetinghouse Facilities Department.  https://www.lds.org/bc/content/shared/content/english/pdf/language-materials/08636_eng.pdf?lang=eng

Looking for contact info, will add if found.  If not, you could use the "contact us/feedback option" on LDS.org to ask for it.

No contact info yet, but this might be a helpful page to use the feedback service to ask for contact info:

https://www.lds.org/help/support/mobile-apps/facility-issue-reporting-fir?lang=eng

Each stake has a high councilor over buildings.  That's how toilets get fixed, roof leaks repaired, sticky locks, doors that won't close fixed, etc.  You don't go to Salt Lake for that stuff.

The problem is not reporting the problem to Facilities Management but getting them to actually do something.

On the other hand if enough people all over the church complain, you might get action, but in this case I think the numbers are so few, it would be like trying to have a vegan Ward Thanksgiving Dinner.

Just reality, but we can wish.

Edited by mfbukowski
Posted (edited)
15 hours ago, cinepro said:

We have a family in my ward that is into "Irlen Syndrome", and they wear special sunglasses to mitigate the flourescent light effects.

http://irlen.com/

 

If that works, THAT would be the solution.

We are so conditioned now for institutions to take care of every possible need, sometimes we expect too much

Edited by mfbukowski
Posted (edited)

My experience with those with health issues in the Church is they don't go asking for people to change things until they have learned there is no other way to go about fixing it.

There are some who have an entitlement approach and these are often the ones that go looking for a fad approach to focus on, but generally those who have chronic, serious issues are not trying to get others to solve their problems for them.  For example, in this thread, the individual was offering to pay for the changes.  They weren't demanding it as their right.

More often, rather than even making a hint of waves in pushing for accommodation to their needs, the chronically disabled just quietly retire and stay at home.

Edited by Calm
Posted
22 minutes ago, Calm said:

My experience with those with health issues in the Church is they don't go asking for people to change things until they have learned there is no other way to go about fixing it.

There are some who have an entitlement approach and these are often the ones that go looking for a fad approach to focus on, but generally those who have chronic, serious issues are not trying to get others to solve their problems for them.  For example, in this thread, the individual was offering to pay for the changes.  They weren't demanding it as their right.

More often, rather than even making a hint of waves in pushing for accommodation to their needs, the chronically disabled just quietly retire and stay at home.

OK, sorry.

Posted (edited)

:good:

I have to admit I found the suggested solutions by the stake people in the original post (masks and canes) to be extraordinarily insensitive.  Their solution is actually dangerous.

Telling people to put blindfolds on and then manuvuer around using a tool they likely have no real clue at using to move around in a crowded (are the kids going to be paying attention or more likely to be providing opportunities to trip or be tripping themselves?) building...I would have told them they had no right to suggest that until they had done it themselves for at least a month.  How in the world were they supposed to fulfill any callings, be able to interact with anyone save those able to take the time to come up and talk with them?  

http://www.visionaware.org/info/everyday-living/essential-skills/an-introduction-to-orientation-and-mobility-skills/how-do-i-learn-to-use-a-cane/1235

"Although the correct cane technique can easily be demonstrated to you by anyone familiar with the technique, it will not provide you with effective protection until you've reached the third or fourth stage of learning, achieved with training from a Certified Orientation and Mobility (O&M) Specialist."

This is not something that can be useful as an occasional method for moving around.  It may even be illegal using a white cane if one is not legally vision impaired and regular canes are impractical for finding one's way around (it needs to be long and lightweight).

http://www.visionaware.org/info/everyday-living/essential-skills/an-introduction-to-orientation-and-mobility-skills/what-type-of-cane-should-i-use/1235

"A Probing Cane ("White Cane" or "Long Cane") Should:

  • Be lightweight so that you can hold and move it in front of you without becoming tired. This usually means that a probing cane is not strong.
  • Be long enough to reach ahead and warn you about obstacles and stairs.
  • Have a tip that can slide easily along the ground.

A support cane and a probing cane are designed differently and serve very different purposes, so the choice of which cane to use will depend on your needs:

If you need a cane to help you know what is on the ground in front of you, it is recommended that you use a probing cane.

  • Please note: If you use a support cane to probe the ground ahead of you, it is usually not possible to reach far enough ahead without leaning forward. This is harmful for your posture and appearance and is also risky and dangerous, particularly when approaching descending stairs. If you miss your footing or lose your balance while you are leaning forward, you are likely to fall forward and tumble down the stairs."
Edited by Calm
Posted
On 6/21/2017 at 10:47 AM, rpn said:

(The suggestion made by leaders so far have been to wear a mask... 

I thought masks weren't allowed in church buildings....

...and use a cane to come to church. 

A rascal-beater from the Nauvoo days? Has it really come to that?

Posted

Oh the person who was given that directive by the SP took as much offense as consistent with bitter tears.   And she even tried the mask (after she sat down) the next Sunday.  But it doesn't seem to be a viable long term thing for her.  I keep hoping for an institutional accommodation/prevention, for others if not for her.

Posted
3 hours ago, hagoth7 said:

...A rascal-beater from the Nauvoo days? Has it really come to that?

I see that Calm has since recommended a different form of cane. 

Posted
On 6/25/2017 at 3:54 PM, Calm said:

http://www.visionaware.org/info/everyday-living/essential-skills/an-introduction-to-orientation-and-mobility-skills/how-do-i-learn-to-use-a-cane/1235

"Although the correct cane technique can easily be demonstrated to you by anyone familiar with the technique, it will not provide you with effective protection until you've reached the third or fourth stage of learning, achieved with training from a Certified Orientation and Mobility (O&M) Specialist."

Hmm. 

I know someone who needs that. And the training. :huh:

Posted (edited)

It is dangerous without training.  And not just for the person using it.  Think what might happen if one accidentally thrust it between the feet of an elderly woman and she tripped and fell.  Smashed knee, broken hip, etc.  And if they were trying to do the same with a heavier support cane...whacking peoples' calves and ankles would likely be the best result.

Edited by Calm
Posted
2 hours ago, Calm said:

It is dangerous without training.  And not just for the person using it....

Listening...

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