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My experience with opioids may help others


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I had chronic pain for many years and learned that the poor Doctors are sometimes only as good as those who do tests for them.  I was misdiagnosed and did not get treatment for the problem but rather ended up on Diamorphine at home.  Pain can get ugly really ugly. Sleep deprivation seems to be the most common side affect of pain.  I remember being awake about two whole days sometimes.  At some point for me not sleeping hurt more than the pain.  It is okay if anyone does not believe any of this.  So when I got the morphine it was beyond amazing.  I felt just like I used to before I got the chronic pain. This last sentence is important and will come up later.  About after a month I needed more morphine to get the same effect. After five months I took a months worth of morphine in two weeks and felt awful.  The pain was there but also the morphine had turned on me and it was adding to the misery.  Not because of me,  not because of my effort but by God's grace I survived cold turkey on the morphine.  The first 24 hours of course was hellish.  I found that by hitting the top of my legs with my fist I could create a greater discomfort than the lack of morphine.  Alternating between the two pains gave me a felling of control that gave me hope to get by the first day,  no sleep at all of course.

So now the point of all this. About a year after this I was watching a program about opioids.  There were three persons they were filming.  In the interviews these people were saying things like this stuff makes me feel complete.  This is always how I wanted to be etc....  Yes they were preaching hard about how much better than they ever felt.  Then after three weeks in the time frame of the film they were all dead.

So now the previous sentence "I felt just like I used to before I got the chronic pain"  I want to humbly say that if the drugs I had from the Doctor had made me feel complete and had been what I always thought that I should of felt like I would not be writing this post. 

The best way I found to think of the what we see is this.  Your driving your car and  you are texting etc.. The car just rolls off a high cliff (no barriers).  They car was going very fast and in the first seconds as you are staring at your smartphone you hardly notice the lost of road noise.  So this is the interesting part. As gravity takes the car towards the bottom of the cliff.  You can (within the time before impact) do whatever you would have done as the car was driving before going off the cliff.  In plain language many people (not all) at some point with these powerful man made drugs have already driven off the cliff but are still alive.

  Nothing short of confining them which is unlawful for other loved ones to do can save them.

 

Edited by Metis_LDS
correction
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2 hours ago, Metis_LDS said:

I had chronic pain for many years and learned that the poor Doctors are sometimes only as good as those who do tests for them.  I was misdiagnosed and did not get treatment for the problem but rather ended up on Diamorphine at home.  Pain can get ugly really ugly. Sleep deprivation seems to be the most common side affect of pain.  I remember being awake about two whole days sometimes.  At some point for me not sleeping hurt more than the pain.  It is okay if anyone does not believe any of this.  So when I got the morphine it was beyond amazing.  I felt just like I used to before I got the chronic pain. This last sentence is important and will come up later.  About after a month I needed more morphine to get the same effect. After five months I took a months worth of morphine in two weeks and felt awful.  The pain was there but also the morphine had turned on me and it was adding to the misery.  Not because of me,  not because of my effort but by God's grace I survived cold turkey on the morphine.  The first 24 hours of course was hellish.  I found that by hitting the top of my legs with my fist I could create a greater discomfort than the lack of morphine.  Alternating between the two pains gave me a felling of control that gave me hope to get by the first day,  no sleep at all of course.

So now the point of all this. About a year after this I was watching a program about opioids.  There were three persons they were filming.  In the interviews these people were saying things like this stuff makes me feel complete.  This is always how I wanted to be etc....  Yes they were preaching hard about how much better than they ever felt.  Then after three weeks in the time frame of the film they were all dead.

So now the previous sentence "I felt just like I used to before I got the chronic pain"  I want to humbly say that if the drugs I had from the Doctor had made me feel complete and had been what I always thought that I should of felt like I would not be writing this post. 

The best way I found to think of the what we see is this.  Your driving your car and  you are texting etc.. The car just rolls off a high cliff (no barriers).  They car was going very fast and in the first seconds as you are staring at your smartphone you hardly notice the lost of road noise.  So this is the interesting part. As gravity takes the car towards the bottom of the cliff.  You can (within the time before impact) do whatever you would have done as the car was driving before going off the cliff.  In plain language many people (not all) at some point with these powerful man made drugs have already driven off the cliff but are still alive.

  Nothing short of confining them which is unlawful for other loved ones to do can save them.

 

I have known or know a few people that have/had chronic pain. You've left out any names in your post, so hoping I can share this on my social media. Would that be okay? Your words will make a big impact!

How are you now? I know what you mean about sleep, it's awful. But I've never had lack of sleep for two days straight like you. And I'm sorry the pain and misdiagnosis was so horrible for you. :(

 

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1 hour ago, Tacenda said:

I have known or know a few people that have/had chronic pain. You've left out any names in your post, so hoping I can share this on my social media. Would that be okay? Your words will make a big impact!

How are you now? I know what you mean about sleep, it's awful. But I've never had lack of sleep for two days straight like you. And I'm sorry the pain and misdiagnosis was so horrible for you. :(

 

Yes please share how you want.  After ten years the problem that caused the pain became better. I also ended up at a pain clinic before that occurred.  I feel the experience expanded my soul, that sounds better than it really is.  So being forced to confront things one would rather not so to speak.  Thank you for your kind words.

Edited by Metis_LDS
addition
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5 hours ago, Metis_LDS said:

I had chronic pain for many years and learned that the poor Doctors are sometimes only as good as those who do tests for them.  I was misdiagnosed and did not get treatment for the problem but rather ended up on Diamorphine at home.  Pain can get ugly really ugly. Sleep deprivation seems to be the most common side affect of pain.  I remember being awake about two whole days sometimes.  At some point for me not sleeping hurt more than the pain.  It is okay if anyone does not believe any of this.  So when I got the morphine it was beyond amazing.  I felt just like I used to before I got the chronic pain. This last sentence is important and will come up later.  About after a month I needed more morphine to get the same effect. After five months I took a months worth of morphine in two weeks and felt awful.  The pain was there but also the morphine had turned on me and it was adding to the misery.  Not because of me,  not because of my effort but by God's grace I survived cold turkey on the morphine.  The first 24 hours of course was hellish.  I found that by hitting the top of my legs with my fist I could create a greater discomfort than the lack of morphine.  Alternating between the two pains gave me a felling of control that gave me hope to get by the first day,  no sleep at all of course.

So now the point of all this. About a year after this I was watching a program about opioids.  There were three persons they were filming.  In the interviews these people were saying things like this stuff makes me feel complete.  This is always how I wanted to be etc....  Yes they were preaching hard about how much better than they ever felt.  Then after three weeks in the time frame of the film they were all dead.

So now the previous sentence "I felt just like I used to before I got the chronic pain"  I want to humbly say that if the drugs I had from the Doctor had made me feel complete and had been what I always thought that I should of felt like I would not be writing this post. 

The best way I found to think of the what we see is this.  Your driving your car and  you are texting etc.. The car just rolls off a high cliff (no barriers).  They car was going very fast and in the first seconds as you are staring at your smartphone you hardly notice the lost of road noise.  So this is the interesting part. As gravity takes the car towards the bottom of the cliff.  You can (within the time before impact) do whatever you would have done as the car was driving before going off the cliff.  In plain language many people (not all) at some point with these powerful man made drugs have already driven off the cliff but are still alive.

  Nothing short of confining them which is unlawful for other loved ones to do can save them.

 

I think you are talking about taking too much of a drug.  I agree that can kill someone.  My wife has chronic pain and has a prescription for hydrocodone, an opioid, but she is very careful about how much she takes of it.  She doesn't want to be addicted to it so she doesn't take it every day, even though she feels pain every day.  She takes it only when it gets to the point where she can't cope with the pain anymore.  She goes weeks sometimes without taking any.  She has type 1 diabetes, neuropathy, fibromyalgia, osteoarthritis, stage 3 kidney disease, and something which sometimes causes pain deep in her legs which hurts her so much she jumps out of bed as almost a reflex and has to walk around a while until the pain goes away, with me sometimes waking up to massage her legs, which helps some.   She drinks a little bit of pickle juice for that when that happens and it seems to make it go away faster.  Doctors don't know what it's from, not able to figure that out.  Anyway, my point is that opioids are handy to have around and do work to lessen her pain.  She just has to be careful not to take too many and she takes them only as she feels she really NEEDS them.  Too many people take them as a routine and they tend to want to take as many as it takes to make all of the pain go away, if they can.  My wife realizes she can't make ALL of the pain go away, so she has to cope with some pain while taking pain medication only when the pain approaches being unbearable.

I'm glad you can cope with your level of pain now without taking any pain medication.  I don't think it is necessary for you to go cold turkey without any pain medication, though, and if you can find something better than some opioid, more power to you!

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15 minutes ago, Ahab said:

I'm glad you can cope with your level of pain now without taking any pain medication.  I don't think it is necessary for you to go cold turkey without any pain medication, though, and if you can find something better than some opioid, more power to you!

Thank you. yes I do not use opioids any longer.  The post was for other people affected by this.  There is a point and IMO we are seeing it in the number of deaths from made man painkillers where will power will not work.  So for many when the car sails off the cliff it is all over.   Pretty much everyone is affected by building tolerance to the drugs it only seems to be the time frame that varies.  So you need more and more and then accidental overdose.

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2 hours ago, Ahab said:

I think you are talking about taking too much of a drug.  I agree that can kill someone.  My wife has chronic pain and has a prescription for hydrocodone, an opioid, but she is very careful about how much she takes of it.  She doesn't want to be addicted to it so she doesn't take it every day, even though she feels pain every day.  She takes it only when it gets to the point where she can't cope with the pain anymore.  She goes weeks sometimes without taking any.  She has type 1 diabetes, neuropathy, fibromyalgia, osteoarthritis, stage 3 kidney disease, and something which sometimes causes pain deep in her legs which hurts her so much she jumps out of bed as almost a reflex and has to walk around a while until the pain goes away, with me sometimes waking up to massage her legs, which helps some.   She drinks a little bit of pickle juice for that when that happens and it seems to make it go away faster.  Doctors don't know what it's from, not able to figure that out.  Anyway, my point is that opioids are handy to have around and do work to lessen her pain.  She just has to be careful not to take too many and she takes them only as she feels she really NEEDS them.  Too many people take them as a routine and they tend to want to take as many as it takes to make all of the pain go away, if they can.  My wife realizes she can't make ALL of the pain go away, so she has to cope with some pain while taking pain medication only when the pain approaches being unbearable.

I'm glad you can cope with your level of pain now without taking any pain medication.  I don't think it is necessary for you to go cold turkey without any pain medication, though, and if you can find something better than some opioid, more power to you!

My wife has similar multiple conditions, and has been taking and managing her opioid prescription similarly and very well over a long period of time.  She is also an RN, which helps her regulate such things.  We have at least two members in my ward with similar chronic pain problems who have been on opioids for almost decades with no problem.  One of these had his life rendered into a state of constant misery after his doctor cut off these meds due to the current opioid hysteria.  And his misery didn't arise from 'withdrawal'.  His pain was due manly to multiple bone breaks including his spine incurred as an air borne ranger.

I think what is missed in all the anti-opioid 'hysteria' (main current driving cause, illegal Fentanyl), is that there is a sizeable fraction of mainly the older population who benefit by their opioid intake.  They aren't in it for the buzz, or "feeling complete", nor do they increase the amount to retains such effects, but to simply remove the chronic pain sufficiently to regain a modicum of functionality in their lives.  They are very aware of the need to back off them periodically.

 

Edited by blarsen
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5 hours ago, blarsen said:

I think what is missed in all the anti-opioid 'hysteria' (main current driving cause, illegal Fentanyl), is that there is a sizeable fraction of mainly the older population who benefit by their opioid intake.  They aren't in it for the buzz, or "feeling complete", nor do they increase the amount to retains such effects, but to simply remove the chronic pain sufficiently to regain a modicum of functionality in their lives.  They are very aware of the need to back off them periodically.

Yes what you find out at the pain clinic is there are many many people with long term pain problems.  If someone says to me I have pain because of such and such I never argue with them because of my experience.  Doctors (specialists) outside of the pain clinic say okay we have done all the tests and we cannot find any wrong and say goodbye nicely because they have many others to see with explainable problems. Mine was explainable but missed.  The pain clinic Doctors are there to treat your pain and educate you about the drugs. It is completely different from a GP giving you a prescription for painkillers. I do not want people to suffer because we restrict painkillers.  Thank you for your comments people need to hear about this complicated subject of managing pain.

Edited by Metis_LDS
grammar
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16 hours ago, Metis_LDS said:

Yes what you find out at the pain clinic is there are many many people with long term pain problems.  If someone says to me I have pain because of such and such I never argue with them because of my experience.  Doctors (specialists) outside of the pain clinic say okay we have done all the tests and we cannot find any wrong and say goodbye nicely because they have many others to see with explainable problems. Mine was explainable but missed.  The pain clinic Doctors are there to treat your pain and educate you about the drugs. It is completely different from a GP giving you a prescription for painkillers. I do not want people to suffer because we restrict painkillers.  Thank you for your comments people need to hear about this complicated subject of managing pain.

Out of curiosity, have you considered or used any cannabinoids? My father had a bout of severe chronic pain because of post polio syndrome. The only thing good about it was that the pain lessened when he laid down so he could go to sleep. He ended up rotating a narcotic with tylenol and asperin, and over months the pain got better. My own experience with CBD is that it seemed effective against low grade pain and itch, but I have not really met anyone who says it is very effective with severe chronic pain.

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2 hours ago, RevTestament said:

Out of curiosity, have you considered or used any cannabinoids? My father had a bout of severe chronic pain because of post polio syndrome. The only thing good about it was that the pain lessened when he laid down so he could go to sleep. He ended up rotating a narcotic with tylenol and asperin, and over months the pain got better. My own experience with CBD is that it seemed effective against low grade pain and itch, but I have not really met anyone who says it is very effective with severe chronic pain.

Yes when the pain was really bad myself and my family did think about,  but because there was no medical cannabis where we live we gave up. We could not face buying it on the street.  As a church member one does not know a lot of dealers.  There also is no tylenol available here.  Before I was given the morphine  I was eating Ibuprofen like candy and suffered a stomach bleed.  Spent a few days in the hospital with that.  Strange you mentioned CBD I take it now for muscle spasms (pain) and I am very happy with it.  At the pain clinic we were told forget about becoming totally pain free if you are a chronic pain patient.  

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